Local boy Joseph Kendrick is seven years old and has NKH, (Non-Ketotic Hyperglycinemia), a very rare life-limiting genetic disorder that severely affects his development.
Joseph’s Goal is a charity set up in October 2012 by Joseph’s parents, Emma and Paul, to increase awareness of NKH and to raise funds for research. In this time they have raised just over £350,000 and are pushing to get to £400,000 for their 5th Anniversary.
Please take a look at their website http://www.josephsgoal.org
“We are so happy to be Pownall Hall School’s charity for this Term. Joseph’s Goal are striding forward to find a cure for our little boy and we are nearly there. Recent meetings with the NKH Research Doctors have highlighted that we are very close to a breakthrough in treatment and a clinical trial for Joe. It has never been more crucial to keep up the momentum of fundraising which is why we were bowled over to hear that Mr. Goulbourn and the team at Pownall Hall School were able to help! Thank you all so much.
Emma, Paul, Joe and Sam Kendrick xx”
Joe and his family will be attending the Summer Fair this year.
National NKH Awareness Day takes place in May. Pownall Hall School will be acknowledging this by asking that the children come into school wearing something BLUE, along with a donation for Joseph’s Goal, on Friday 19th May.
Emma and Paul are extremely humble and inspiring people, a teacher and a journalist by profession, who have gone above and beyond to set up this charity and raise an incredible amount to help find a cure for this rare genetic disease. Joseph is fighting strong too and is currently one of the
oldest known people in the world living with NKH (he was given just weeks to live when he was born!).
Joseph was the mascot at Wembley when Wigan Athletic FC won the FA Cup in May 2013.
Emmerson Boyce, as Captain, was asked to wheel Joseph out onto the pitch in his wheelchair for the standing ceremony before the match, but instead requested to carry him. This photo of Emmerson is iconic to fans in the footballing fraternity, showing humility and compassion before such a major game, not only in his career, but in the club’s history. Joseph really was Wigan Athletic’s lucky mascot!